Tim was diagnosed with cystinuria relatively quickly after his first stone event because his older brother also has the disorder. By working with his doctor to set overall goals for his long-term health, Tim is staying on top of his cystinuria. He has a clear plan to avoid cystine stones—and he's sticking to it.
After multiple surgeries, Trevor committed to taking better care of his health and found success in managing cystinuria. He has developed a strong partnership with his doctors—and the family and friends who support him.
Join the Cystinuria Resource: Rare Together community on Facebook. This group is dedicated to individuals and families affected by cystinuria. This page offers information on cystinuria, as well as tips and advice on how to manage it, with the goal of preventing the next cystine stone.